A LETTER TO MY FAMILY
During my practice in geriatric care management and my work with aging families, I have observed so many wonderful older folks unable to exercise the responsible decision making of their past. Many factors play into this inability or unwillingness, not the least of which may be brain damage from disease process. There is often a strong belief that only those who are really decrepit and miserable require help. Folks may fear getting to THAT place. Accepting help is viewed as an admission that the dreaded time has come. This is scary and we tend to use denial to protect ourselves from those things we fear. As a result of the denial and fear of accepting help, our lifestyle quality begins to suffer, our families must endure very real fears and frustrations as they watch us suffer needlessly, and our options list becomes very short.
Conversely, trusted family and friends can help guide us toward proactive decision making. We then have the opportunity to capitalize on our remaining strengths and use our energy for living life rather than only existing.
A letter to our families written while we are in healthy middle age can clarify our wishes and expectations. To outline those “red flags” that we define as reasonable indicators for a need for change can be helpful to our children when we ourselves begin to demonstrate some of them. Gentle reminders of our earlier wise words can help us make the necessary adjustments. What a gift to one’s family!
The following is an example of a letter that you might use as a guide. Make copies for your children or other family members and keep one for yourself. It would be a valuable family meeting topic where everyone could talk about their ideas about aging and quality of life issues, and values. The better our families know us, the more certain we can be that they will honor our preferences.
Nancy M. Driskill, RN, MS, CMC
11/10 rev
My Dear Family,
I am comfortably aware that my life here is finite. It is my fondest hope that I will be able to age well into my 90’s without the challenges of a failing body and/or mind. I would like to think that I could continue my life in my current comfortable manner and have a myriad of choices among painless care and housing options.
I know that while this is my fondest hope, it is also fairly unlikely. In some effort to ease the burden of responsibility you are likely to feel, here, my dears, are the “red flags” that I now consider sufficient to merit discussion about a change in my living situation.
1. Wearing the same one or two sets of clothes over and over.
2. Refusing to leave the house to do once familiar activities.
3. Failure to prepare and eat regular well-balanced meals.
4. Hoarding food, newspaper, trash, paper goods.
5. Moldy food regularly appearing in my refrigerator.
6. Demonstrated failure to remember to take medications appropriately.
7. Telling the same stories over and over again.
8. Sleeping all day, being awake all night.
9. Change in my housekeeping habits.
10. My refusal to give up driving even after being advised to do so by medical professionals or after an accident.
11. Deterioration of my health such that I must have someone to help me more than three days /week for things like oxygen, insulin, or other critical needs.
12. Chronic debilitating pain.
13. Recurring acute health conditions including urinary tract infections, upper respiratory infections, falls, repeated blood sugar imbalances if diabetic.
14. Evidence of confused thinking, memory loss.
If you see these things, please sit down with me and gently remind me of my words today. Show me this letter. I wish to be proactive regarding the quality of my life and to make choices before I have none left to make. I wish to spend my late life years in positive and loving relationship with my younger relatives, sharing and benefiting from our collective and individual strengths.
I trust you.
Much love always,
Mom (Dad)